たっくん

[DeepL Translation - needs review] This picture book is intended to help as many people as possible to better understand the disease as well as to portray my son living with it. My son has xeroderma pigmentosum. It is an intractable disease that causes skin cancer on all parts of the body due to exposure to ultraviolet rays, and there is still no cure. In addition to skin diseases, as we age, our body functions deteriorate more and more, resulting in serious symptoms. Muscle function als...