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Blurb
[DeepL Translation - needs review] My body is being destroyed as a testament to the time I have lived through. Every time I read a book, my spine bends, my lungs collapse, my throat is punctured, I walk and bump my head, my body has been broken in order to live." The 128th Bungakukai New Writers Award winner, which shocked the selection committee with its overwhelming power and humor. They were words that were struck, engraved, and will never be erased from my mind. I strongly wished to go t...
Specs
Page Count:
96
ISBN:
4163917128
ISBN13:
9784163917122
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Reviews
(3.82/5)11 ratings1 review
lilhauntsays
February 1, 2025
Naphthalenerated
July 4, 2024
omk3rated
April 9, 2024
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April 2, 2024
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March 27, 2024
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March 22, 2024
PaleFirerated
February 25, 2024
harunohanashirated
January 22, 2024
karmologyclinicrated
December 8, 2023
bungakushoujorated
November 4, 2023
jiaisreadingrated
October 18, 2023
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Disability
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This is a rare book that fully humanizes the severely disabled.
Shaka has myotubular myopathy, a rare genetic condition which causes her spine to curve and body to cave in on itself--thus, she is the titular Hunchback. Because this condition leads to a collapsed lung, Shaka can't breathe the same way the able-bodied do. She breathes through a tube, and has to clean it every 30 minutes to prevent suffocation.
Though Shaka's everyday life may be unimaginable to many, she remains strong minded an